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Table 3 Motivation for patient to choose not to pursue genetic counselling
| Reasons for discontinuing genetic counselling | Frequency | Percentage |
|---|---|---|
| 1) The aim of the genetic testing is not clear | 10 | 17,9 |
| 2) I do not feel able to face the stress of hospital visits | 24 | 42,9 |
| 3) I am afraid of the consequences of any negative information, for me or my family | 27 | 48,2 |
| 4) I do not feel it is fair to involve my family | 18 | 32,1 |
| 5) I feel guilty towards my family | 5 | 8,9 |
| 6) My family is against genetic testing | 4 | 7,1 |
| 7) My partner is against genetic testing | 3 | 5,4 |
| 8) I do not want to know if I have a genetic mutation which predisposes me to cancer | 15 | 26,8 |
| 9) The test is a waste of time as it will not improve the quality of my life | 14 | 25,0 |
| 10) The test is a waste of time as I already have cancer | 6 | 10,7 |
| 11) The hospital is too far away | 21 | 37,5 |
| 12) I do not have time to do all the visits needed for the genetic testing program | 19 | 33,9 |
| 13) Having the test will not prevent me from getting cancer | 23 | 41,1 |
| 14) I was not able to get an appointment with the doctor because the administration was unavailable | 9 | 16,1 |
| 15) I was not able to get an appointment with the doctor because the phone-line was always engaged | 13 | 23,2 |
| 16) The doctor was unavailable | 2 | 3,6 |
| 17) I did not feel the medical staff was sufficently welcoming | 7 | 12,5 |
| 18) I do not feel I can face the stress of having blood tests | 2 | 3,6 |
| 19) I would not be able to tell my family any bad news | 18 | 32,1 |
| 20) It would be to hard to know that I would probabely develop cancer | 24 | 42,9 |
| 21) If I were to be a carrier of a mutation I could not stand the idea of undergoing frequent check-ups | 10 | 17,9 |
| 22) I think early diagnosis is a waste of time | 4 | 7,1 |
