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Table 3 Motivation for patient to choose not to pursue genetic counselling

From: The withdrawal from oncogenetic counselling and testing for hereditary and familial breast and ovarian cancer. A descriptive study of an Italian sample

Reasons for discontinuing genetic counselling Frequency Percentage
1) The aim of the genetic testing is not clear 10 17,9
2) I do not feel able to face the stress of hospital visits 24 42,9
3) I am afraid of the consequences of any negative information, for me or my family 27 48,2
4) I do not feel it is fair to involve my family 18 32,1
5) I feel guilty towards my family 5 8,9
6) My family is against genetic testing 4 7,1
7) My partner is against genetic testing 3 5,4
8) I do not want to know if I have a genetic mutation which predisposes me to cancer 15 26,8
9) The test is a waste of time as it will not improve the quality of my life 14 25,0
10) The test is a waste of time as I already have cancer 6 10,7
11) The hospital is too far away 21 37,5
12) I do not have time to do all the visits needed for the genetic testing program 19 33,9
13) Having the test will not prevent me from getting cancer 23 41,1
14) I was not able to get an appointment with the doctor because the administration was unavailable 9 16,1
15) I was not able to get an appointment with the doctor because the phone-line was always engaged 13 23,2
16) The doctor was unavailable 2 3,6
17) I did not feel the medical staff was sufficently welcoming 7 12,5
18) I do not feel I can face the stress of having blood tests 2 3,6
19) I would not be able to tell my family any bad news 18 32,1
20) It would be to hard to know that I would probabely develop cancer 24 42,9
21) If I were to be a carrier of a mutation I could not stand the idea of undergoing frequent check-ups 10 17,9
22) I think early diagnosis is a waste of time 4 7,1